Comments on: CBB Exclusive: Scott and Renee Baio open up about Bailey’s health scare, Part 1

By: Diana

Diana — Mon, 22 Sep 2008 06:47:51 +0000

I am sooo gladdd you three are fine. I am a Mom of four and a Grammy of three and as I told my Son recently, "Your Baby Girl will soften your heart". She is three months old and he is showing to be a great Dad even though he did not think he would be before she was born. Scott, I knew that your Wife and Daughter would change your life for the better. See even Grammy's liked your show and are very proud of you. Don't forget to always stop and smell the roses, because life is so short. So glad you found your beautiful Wife!!

By: Lori Freedle

Lori Freedle — Fri, 22 Aug 2008 06:07:29 +0000

Dear Scott and Renee,
I am so glad to hear that you two and your beautiful baby girl are doing well. I wish you all the happiness in the world!!

By: Genene

Genene — Fri, 08 Aug 2008 18:26:23 +0000

I have a son who was diagnosed with Malonic aciduria. He is the 18th case world wide. Our blood and urine tests both came back positive. After hearing about Scott & Renee’s ordeal I have been given hope that maybe our skin biopsy will also come back negative. If there is anyone reading this who has any information or knows of someone who is affected by this condition … I would be greatful if you could respond to this comment. Thank you Scott and Renee for going public and best of luck with your beautiful healthy baby.

By: Vicki

Vicki — Fri, 20 Jun 2008 20:54:42 +0000

Scott & Renee –
I am SO GLAD to hear that your sweet little Bailey is well! Our son was born with a metabolic disorder called PKU (Phenylketonuria). It was detected here in CA by NBS in 1995, and he was officially diagnosed at 1 week of age. We are very thankful that CA screens newborns for these disorders and subsequently saves so many lives! I commend your determination to bring national awareness to the importance of NBS. It is a topic we parents of children with PKU regularly discuss, and our voices and attempts to raise awareness often feel like futile efforts. It is also important to go one step further and realize that the need for nationally mandated ENBS, important as it is in saving lives, goes hand-in-hand with the need for nationally mandated coverage of treatment for children AND adults who suffer from these disorders as well. Even in states where ENBS is practiced, insurance companies are not necessarily required to provide coverage for the treatment of these disorders – leading to GREAT financial burden on adults & families who do not qualify for state-assisted medical care or whose insurance companies do not cover their care. And this can inevitably lead to unnecessary deteriorating health & death for the afflicted individual – which is what we try to avoid in the first place by mandating national ENBS. Scott & Renee, please keep the public informed on your efforts. I have a feeling there will be many supporters who will jump on the bandwagon with you to make this nation aware of this need!

By: Susan Morgenthaler

Susan Morgenthaler — Fri, 20 Jun 2008 13:08:55 +0000

Renee & Scott i am so happy everything turned out great for you both and your little girl … My son was tested for the same disease … Thank God his test showed a false positive as well …My husband and i could relate to how you both felt when going through “the madness” .. but it does put everything in it’s proper perspective ….

Susan & Steven Morgenthaler

By: GA Mom

GA Mom — Fri, 20 Jun 2008 07:53:31 +0000

Heather,

If you're still reading the comments -- we went through the same thing with a galactosemia result with our daughter. At 5 days old, the pediatrician's office called and said to stop breastfeeding immediately and bring her in for more testing. We had to go back for multiple testing, blood and urine, and it took forever to get results. No one seemed to have much information on it either, even though we live only a few miles from Emory Genetics which is conducting one if not the only research study on the condition. We finally got the DG diagnosis at 3 months, a big relief after all that waiting. I pumped for 4 months and they let me use half formula half breast milk. We did the milk challenge at 1 year and thankfully everything's fine now. It's a difficult situation, to be sure. Hang in there.

By: Emily

Emily — Thu, 19 Jun 2008 17:20:49 +0000

I am so happy for them! I had my child seven weeks early and I know the feeling of dread that something awful would happen to him or that my child had a disorder that would go unnoticed. So far he has amazed me with his progress and I can only hope for the best for them as well.

By: leo panzarella

leo panzarella — Thu, 19 Jun 2008 07:00:30 +0000

I was a big fan of the show and I am so glad everything turned out o.k in the end. I cant emagine what you guys went through but thank god there is a god and god bless all three of you. Leo

By: justpicky

justpicky — Wed, 18 Jun 2008 03:52:00 +0000

I checked some sites but they NEVER said what states does this test on babies. I wished there was a list to see.

With everyones help , we all can have this test in every state / cities.

By: Dotty Beagle

Dotty Beagle — Tue, 17 Jun 2008 19:25:52 +0000

Praise God that their baby is healthy! God Bless all of you!